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Today is the ninth annual Rare Disease Day, an international advocacy day held on the last day of February — a rare day for rare people. Rare Disease Day 2016 recognizes the crucial role that patients play in voicing their needs and instigating change that improves their lives and the lives of their families and caregivers.
New drugs are being developed to treat Duchenne Muscular Dystrophy — and many other rare diseases — but the treatments are stalled at the FDA. A new Kickstarter campaign is raising funds to complete a documentary about parents fighting to stop Duchenne Muscular Dystrophy and gain access to potentially life-saving drugs before the disease kills their children.
In a big shift of focus, the personal genomics company 23andMe recently announced the creation of a new therapeutics group with the intention of developing new therapies for both common and rare diseases.
Today is Rare Disease Day 2015, an international advocacy day to focus on the daily lives of patients, families and caregivers who are living with a rare disease. Rare disease communities have been responsible for the reinvention of many aspects of our healthcare system are truly paving the way for precision medicine.
Today is the eight annual Rare Disease Day, an international advocacy day held on the last day of February — a rare day for rare people. Rare Disease Day 2015 puts the focus on the daily lives of patients, families and caregivers who are living with a rare disease. This year’s slogan is “Day-by-day, hand-in-hand”, which emphasizes the need for international cooperation.
